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Every six months, an eye appointment to make sure the Plaquenil wasn’t destroying my eyes. Having to sit in a dark room and click a button when I saw the squiggly for five minutes per eye.
Every six months, an appointment with my regular doctor for blood work. Changing the amounts of my thyroid medicine and prescription Vitamin D.
Every three months, an appointment with the dermatologist. A smile that the bald spot was improving and a, ‘see you next time.’
It gets old fast. Poked. Stabbed. Drained. Same routine. Two pills a day and another once a week.
For a while I was convinced that I was very close to being normal again. Then the days would come and remind me that I was still far from it.
Comments about grey/white looking hair coming from my head and that I should do something about it. Comments that went a little like, ‘I always can find you in the crowd, I just look for the headband.’
My pride was shot. That’s not at all what I wanted people to see.
At the next dermatologist appointment, I was told that they assumed the other patient was back to normal because they hadn’t seen her since. Great for her.
My alopecia on the other hand, had stopped improving. It was time to try a combination of things. An old man at the clinic that is renown for his work with alopecia and hair cases came in. He observed me through a magnifying glass while the other doctor patted my head.
They decided steroid injections was the next step.
If you’ve never had an injection on your scalp I don’t recommend it. It is painful. If they’re injecting an alopecia spot, it’s not just one go. It’s several.
Small liquid pockets settle just under the scalp, resembling the mosquito bites you used to scratch as a child until they’d swell up to form one large lump.
The initial pain subsides in 15-20 minutes. Then a headache sets in for the rest of the day.
I knew this was going to be several rounds of pain. I just hoped that it wouldn’t be without results.
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